Patient Forums

People living with HIV have been saying for years that they want to be more involved in the design and delivery of services (see the Positive Persons’ Manifesto 2014, 2015 and 2016).

HIV Scotland also worked with the Scottish Government to ensure that Involvement was included as a central theme of the updated Sexual Health and Blood Borne Virus Framework, which states: “Patient involvement is core to good practice and should not be seen as optional” (P8).

Local Patient Forums

HIV Scotland are keen to work in partnership with local health boards to establish and maintain local patient groups/forums which can feed ideas from people living with HIV into service design and delivery.

In 2015 we worked with Highland NHS, Lothian NHS and Fife NHS to help people living with HIV to initiate local forums. We are now in the early stages of working in Grampian NHS and Tayside NHS.

Over the coming years we plan to develop more opportunities for people living with HIV across Scotland to have a say in the treatment and care services they use, so that every health board in Scotland which provides HIV treatment services involves patients in the design and delivery of these services.

For more information, or to get more involved, see the National Involvement Network .