National Involvement Network

People from across Scotland who are living with HIV have stated very clearly that they want to be more involved in the decisions that affect their lives.

“Patient involvement is core to good practice and should not be considered optional.”
(The Sexual Health and Blood Borne Virus Framework Framework 2015-2020)

In direct response to the feedback HIV Scotland has gathered from HIV-positive people through our annual Positive Persons' Forum, and drawing in recommendations from the updated Scottish Government’s guidelines, we are now establishing Scotland's first National Involvement Network. This is a new project that will offer guidance, support and training tailored to specific regional needs, help enable people living with HIV to come together to ensure we have a far greater influence on the decisions that affect our lives.

Regional representatives will champion local involvement and these Regional Involvement Reps will come together nationally to share experiences and successes, pool resources, and learn from each other. The National Involvement Network will also build standards of involvement and an effective means of evaluating and recognising where involvement is being done well and of highlighting where improvements need to be made.

These new involvement initiatives will help encourage decision makers, service providers and people living with HIV to work together to deliver better-informed services and policies that will result in long term improvements in the health and well-being of all people living with HIV in Scotland.

The National Involvement Network has the opportunity to be one of the most effective and resilient collective voices that people living with HIV in Scotland have ever had, firmly establishing us at the heart of HIV service provision and policy, both locally and nationally.

To find out more, to keep up to date with what’s happening in your area, or to get involved, contact the National Involvement Coordinators, on 0131 558 3713, or via email at
Lebo or David

Further details about HIV Scotland’s Involving People in Services: A Practical Guide To Why and How can be found here.